JUNTS. Overcoming social and educational barriers and fostering literacy about interferences and difficulties in understanding information and documentation targeting families of children affected by rare diseases

Area: Health Sciences

PI: Armayones Ruiz, Manuel

Research group: PSINET - Psychology, Health & ICT

Project status: Open

Funding institution: RecerCaixa 2015 – Catalan Association of Public Universities and RecerCaixa

Dates: 2015-2019

Objectives: Health literacy entails knowledge, motivation and skills to access, understand, evaluate and apply the information, with the purpose of forming an informed opinion and being able to take decisions about health, treatment of diseases and enhancing quality of life.

The JUNTS project addresses a specific problem: the fact that language and cognitive interferences in the texts written by professionals and associations for patients and families prevent their assimilation. In the context of a rare paediatric disease, the project addresses the challenge of making medical and health information accessible to the family and providing solutions (a protocol of recommendations for professionals and associations, and an app with appropriate information for the affected families) that will enable a more inclusive literacy of this population group.